Working with EDS

I try not to complain, really I do... in fact my two doctors both say one of the things they love about me is that I don't complain all the time. They both also say they love me b/c I refuse to give up, and just keep plugging away at life.
Yea....so now they've teamed up to tell me that they think I should "work from home- you know- telecommute"......
The reasoning behind this is that they feel the process of me getting in and out of the truck, dealing with my wheelchair, etc. is putting too much physical stress on my joints. I should stay home, therefore, and eliminate the two trips in and out of the truck each day......
sounds reasonable enough, logical enough....
but FIND a real 'work from home' job! Yea, yea, I could talk to my boss, but I can tell you pretty certainly he will NOT go for me telecommuting. I doubt he will want to make the changes necessary for it to happen, and I can't say I blame him. I wouldn't want my checkbook walking out the door either. Since that is a LOT of what I do.....well.... be logical.
So NOW what?!?!?!
Right now I'm not on "doctors orders" to stay home...they said they wouldn't do that to me "yet"..... and I haven't said anything to the boss either. I'd love to find a real job that I could do from home that would pay decently. I make a decent salary now and that is going hand over fist to get me out of debt (raising kids with an ex that didn't believe in paying child support didn't help) and what little extra I have is going towards building the handicap accessible house I need for my wheelchair.
I don't want to go on disability. For one thing, I don't want to be in the hole for the years it takes to fight it, for the other, I don't want someone telling me I can't go fishing b/c I don't work and am on disability..... it's bad enough to have people at the grocery store make comments about the things I'm buying with "their tax dollars". Usually I look them in the eye and say "I work full time, thank you" and they shut up....besides the fact that I think this is BEYOND rude, I can't say I don't feel the same way when I see people I know on disability building a garage, by themselves, from scratch....... or planting 100lb trees in their yard.....or hiking through the state park near our house. I can't do those things and I work FULL TIME..... but still..... I've gotten to the point that I won't go to the store without my husband or a friend. Partially because it's a lot easier with help, but also because people won't say things like that if you are with someone.
I'm just so frustrated. Why aren't there legitimate work from home jobs? Why don't people think you can still be a productive member of society because your brain still works? Look past the wheelchair? Just because my joints dislocate doesn't mean my brain does too....it actually works pretty good. Most of the time. Days like today, it gets a little sideways. I just don't know what to do. I want to work, I want to earn a salary, I want to pay my bills. Why can't I?